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Caring For Elderly Parents
August 31, 2011
8:55 am
Leah's Mom
Super Chicken
Forum Posts: 543
Member Since:
October 31, 2010
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41

joyfulnoise-

It was good to hear from someone else whose dad is blind!  Same basic scenario for us w/lifeline, etc., but he his abilities to navigate on his own have changed dramatically in the last 13 months or so.  Even what little sight he had has declined slowly over the years so he has lost the ability to even see the little he did.

Blindness definitely changes the playing field!  So much of what we do depends on sight and when other health systems begin to decline, it puts things in a totally different perspective.

Sorry to hear about the "abuse/abandonment" situation.  Very frustrating – for you AND for him!

August 31, 2011
9:51 am
Ruthmarie
Mighty Chicken
Forum Posts: 326
Member Since:
May 5, 2010
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joyfulnoise- oh my goodness, that development never crossed my mind … I'm so sorry for that surprise.  It does alert me as to pressing steps in our immediate future.

I've been speaking to my mother about having someone looking in on her morning and evening (I live 20-30 min away depending on traffic and am fixing about half the meals).  Up until this recent implosion she has resisted every suggestion including the LifeLine which she only wears when I remind her (and she's fallen several times with a cell phone … one good bounce and that's out of reach!).  And yet she won't openly discuss any alternatives (gad, she fibs to the doctors as to her actual health) … although I've begun to suspect she essentially wants to move in with us and be cared for by someone familar but can't get around our space restriction.  She cared for her own mother who was quite ambulatory, but that was in a house more than twice the size with wide doorways and hall compared to ours today.

Watching this slow decline has been unnerving as DH and I are two parents to our only child … and in no position to afford long-term insurance.  Keep up exercise and eat right!  It wasn't like we didn't plan: we were going to sell this small house with big equity in 2007 to move to another state and purchase a larger house with a corner just for my mother … the real estate implosion moved too quickly and the house is now worth half of where it was with a slightly underwater mortgage.  Trapped and, pfffhht, went the retirement security.

Okay, small rant over, thank you … it's a huge relief to let it out with folks of similar conflict that won't lift an eyebrow.

August 31, 2011
4:16 pm
kellyb
Mighty Chicken
Forum Posts: 336
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June 2, 2010
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I think I'm going to make my DH sit down and read all of these posts.  He just got back from a 3 hour visit to his father's doctor.  His dad now has to take insulin and still has not made one single adjustment to his diet, current weight 318. The doctor told him if he lost weight, he might be able to control or slow his insulin usage.  He's now having circulation issues with his legs.  My husband is one of 7 kids, all who live within 5 miles of their parents and yet he's the only one going to the doctor with his dad.  Two of his sisters help clean and run errands.  It's really tough on DH.  My parents are both gone so I've already been through this.  I know he's angry at his dad right now and feels guilty about it.  I told him those feelings are perfectly normal and it's ok because he continues doing what's right.  Gosh, this is such a tough time for so many.  It's great to know there are others who not only care but also understand how difficult this is.  Thanks for being there.

August 31, 2011
7:55 pm
Ruthmarie
Mighty Chicken
Forum Posts: 326
Member Since:
May 5, 2010
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Oh, wow, kellyb … my mother's mother was a latent diabetic requiring oral insulin and she was one major piece of mischief in the forbidden land of sugar as I remember from childhood.  Not only would she get up in the middle of the night and bake a dozen cinnamon rolls for family … which mysteriously shrank to only 10 rolls by breakfast time … but she would order up boxes of her favorite  chocolates from the drugstore and have them delivered (this is back in the day of free service) and hide them between the mattresses.  Finally a call to the drugstore to declare delivery a no-no followed by a tough-love kitchen table council was the only key.  It took all the family living under that roof to keep grandmother on the straight and narrow, with all of us following a low-sugar diet to keep temptation out of the house.  Removing temptation brought yelling and even tears but was about the only thing that worked with an out-of-control sweet tooth.

Tell your DH he'll have to hang tough … it is worth it.

September 1, 2011
7:51 am
cincyjojo
Big Chicken
Forum Posts: 76
Member Since:
May 23, 2010
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I am second youngest in my family.  My grandmother lived with us and we all helped take care of her.  My father was a diabetic in denial with very poor vision and became an amputee.  My mother was his sole caretaker.  When he was able to get around, he would walk up to the store and buy cookies and stash them like an alcoholic hides their alcohol.  My parents always rely/relied on my older siblings and don't even consider me for help – even now.  So, from the outside I have witnessed/learned this:

1) As a caretaker, take care of yourself.  I've seen caretakers sicker than their patients because they ignored their own needs.  My uncle passed from alzheimers taking care of his wife with alzheimers.  She's still with us.

2) Know your limits and your gifts.  Grandma and dad finally went to care facilities when mom could no longer physically or emotionally care for them.

3) Utilize services.  Dad went to daycare so mom could have respite time or work.  He enjoyed it and mom didn't come home to sales people my father invited over when they cold called the house because he wanted/needed company.  He also ran up a plumber's bill (hourly) because dad talked and talked and talked instead of letting the guy work.

4) Don't wait for family to offer.  Call them and tell them you need a break and ask, "what day can you come over to help"?

September 1, 2011
9:02 am
FarmGrammy
Big Chicken
Forum Posts: 70
Member Since:
February 15, 2011
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This is just fascinating and full of good information.  With my elderly uncle, a diagnosis of dementia was sure to be made, if he had not started moving from state to state.  He appeared normal most of the time, but his local doctors knew.  I think either one of them should have encouraged his son or one of us neices/nephews to start the process to protect his assets before he literally gave everything away.  Hind sight… makes me sad, but so powerless.  His son did not need his house/land/assets, but still, things like that are for your kids, not a sneaky neighbor who ingratiates himself into your life.

Anyway, on a slightly different topic, while you are taking care of elderiy relatives, think about your own future as well.  If you get Long Term insurance at an early age it is not very much per month.  Ours is $108 a month for two and provides $250,000 worth of care per year, in our home as long as possible and then in a nursing home of our choice.  I took it out at age 55, don't know what the rates are now. 

September 1, 2011
9:18 am
kellyb
Mighty Chicken
Forum Posts: 336
Member Since:
June 2, 2010
Offline
47

cincyjojo,

3) Utilize services.  Dad went to daycare so mom could have respite time or work.  He enjoyed it and mom didn't come home to sales people my father invited over when they cold called the house because he wanted/needed company.  He also ran up a plumber's bill (hourly) because dad talked and talked and talked instead of letting the guy work.

4) Don't wait for family to offer.  Call them and tell them you need a break and ask, "what day can you come over to help"?

 

All good advice unfortunately at this point you'd have to get his dad to
cooperate. He wasn't getting two of his prescriptions filled because they were
quite expensive. He qualified to get them at greatly reduced prices but
wouldn't. DH has asked his siblings for help but basically it's just his two
sisters and him. The others have lots of excuses. One has never even returned
his calls. They did have 3 family meetings but only 5 showed up and two never
did what they promised.   One of them
being a NURSE!  She still says her dad
doesn’t have diabetes!

I am worried about my DH. He's extremely busy, often working 12+ hours each day and then getting phone calls from his mom all through-out the day. Their family dynamic is far different than was my family so I can only help so far.  He needs to join CiTR and have this wonderful group for support!  Keep up the great advice and support, I really appreciate it.

September 1, 2011
10:57 am
Ruthmarie
Mighty Chicken
Forum Posts: 326
Member Since:
May 5, 2010
Offline
48

Kellyb ….

As far as I've seen with family situations of caring for parents, there is always one adult child that becomes the principal heavy whether he/she wants the job.  My mother became that for her mother when her eldest and youngest siblings wussed out (major denial) and was the one that turned the tide of my grandmother's stubborn second childhood.  I can tell you that the kitchen table council with my grandmother involved my mother having to deliver the ugly statement: "You are going to die far sooner than later".  Blunt words wielded like a blunt instrument, however unpleasant, finally had an effect after months of careful handling.

As far as your DH's siblings-in-denial, their inaction forfeits any criticism of what the pro-active siblings do for their parents' benefit.  That includes denial of their father's condition and boils down to put up or shut up.  Your DH sounds like an absolute sweetheart (what a keeper!) thats trying to do the right thing for everybody and wearing himself thin in the effort.  He and his two sisters are plainly the core of parental support and need to stop worrying about cajoling the emotionally reluctant for help.  Yeah, tough love in that direction too.  This sounds horribly harsh, but the hard-booted approach was about the only thing that worked on the stubborn streak that ran through our family (ah, still does).  I wish your DH (and you as his support) bottomless strength.

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